Sitting on the Board of the Directors of the Down Syndrome Association of Greater Cincinnati is great. At our last meeting, we reminiscing about the history of DSAGC, and one of the founding members of DSAGC attended the meeting. She provided a good deal of history about the early days of the organization, and she also read this wonderful poem that appeared in the materials that they handed out back in the day (her daughter with Down syndrome, by the was is 30 years old, and it was so interesting to hear how full and rich her life is!)
See Me For Me
When you look at me -
What do you see?
When you look into my eyes
Do you see beautiful blue,
sparkling with joy, delight
in my accomplishments
Or do you see that "almond shape"
or "brushfield spots"?
When you look at my hands
Do you see them reaching
for toys, writing the alphabet,
throwing a ball, doing a
meaningful job
Or do you see a "simian crease"?
When you look at my face
Do you see the resemblance
to my parents, that I have just had
my hair permed
Or do you see a "flat face" or
"epicanthal folds"?
When you look at my behavior
Do you see my feelings of
pleasure and anger, my desire
to achieve, my frustration in
being treated like a baby
Or do you see the "stubbornness"?
When you look at my development
Do you see me playing with peers,
participating in sports, growing
into a productive adult
Or do you see "low muscle tone" or
"the eternal child"?
When you look at my family
Do you see loving parents wanting
to challenge me to my ultimate potential,
sisters and brothers who have a better
understanding of the differences in us all?
Or do you see a family torn apart by my
difference, constantly in crisis, unable
to accept, never to feel the joy of
having a "normal child"?
What Do You See?
Look At Me.
Look Closer.
See Me For Me.
Written by :
Donna Roll
Dedicated to
Mary Ellen Graham
Founder of the DSAGC.
Love it Melissa
ReplyDeleteI've never seen that before and I love it! Thanks for sharing!
ReplyDeleteI like the poem, and I LOVE the picture of Violette. :)
ReplyDeleteLOVE THIS!! I also shared it on my blog. It is the perfect follow up to my post a few days ago.
ReplyDeleteSorry-not post related but I can't find a contact email for you and wanted to get in touch.
ReplyDeleteI have completely accidentally (don't ask how) taken over the got47.blogspot.com address and want to see about re-purposing it more broadly or letting people know the link is no longer what it was.
Anyways...I'm at http://navagating.blogspot.com
Love this! Thanks for sharing. I'm posting it on my blog. It sums up what I've been going through recently. Violette is beautiful!
ReplyDelete