Saturday, August 22, 2009

NDSC Compendium Web Links - 2009

NDSC Convention Compendium Web Links

Since Violette was born, I've followed what has gone on at the NDSC Convention. It is the Annual Gathering of the DS Community. The first year she was born, the event was in Kansas City. I bought the CD's and listened to every single presentation in my car. With over 60 Workshops, it makes for a lot of information on Down syndrome! My girls kept asking me when I'd EVER be finished with the BORING CD's!

I went to the Boston Conference last year. It was great, and I learned a lot and more importantly got to know a bunch of great people in the DS community.

This year it was in Sacramento. I didn't go, but I did get the Compendium of all of the papers. I have the CD's on order.

I always wished that there were a spot online where I could go and click on all of the links for all of the presentations. This year, I decided that I really wanted them all in once place, so I went ahead and typed them all up. They are listed below. Some of the links I'm certain don't work - please leave me a note saying which ones are wrong and I'll check to see if they are bad links and try to correct them, or if it was my own error (which is more likely!)

Math Doesn’t Have to be a Drag

www.dsfoc.org -The Learning Program

http://www.see-and-learn.org/ - DownsED International’s See and Learn Program

http://www.downsed.org/discussion-lists/ - Join one of the DownsEd International’s Discussion Lists

Join One of the Learning Program Email Lists

thelearningprogram@yahoogroups.com – for anyone using LP materials

TLP_teacher2teacher@yahoogroups.com – for educators

http://www.downsed-usa.org/

http://www.learningpage.com/ - Math Worksheets

Behavior and Communication: Promoting Positive Behavior Change

http://www.apbs.org/ – The Association for Positive Behavior Support

http://www.pbis.org/ – Center on Positive Behavioral Interventions and support

http://rrtcpbs.fmhi.usf.edu/ - Rehabilitation Research & Training Center on Positive Behavior Support

http://flpbs.fmhi.usf.edu/ - Florida’s Positive Behavior Support Project

http://education.ucsb.edu/autism/JPBI.htm - The Journal of Positive Behavior Interventions

http://www.beachcenter.org/ – The Beach Center on Disability

http://www.behavioradvisor.com/ – Dr. Mac’s Amazing Behavior Management Advice Site

http://challengingbehavior.fmhi.usf.edu/ - Center for Evidence-Based Practice: Young Children With Challenging Behavior

http://www.iidc.indiana.edu/irca/ - Access Autism

Improving Feeding Skills and Speech Clarity: Using Oral Motor Therapy

http://www.talktools.net/

A Land of Opportunity: Increasing Diversity within Your Organization

http://www.ndsccenter.org/

http://www.tash.org/

http://www.ndss.org/

http://www.downsyndromeindiana.org/

Resources for African American Families
http://www.prince-evan.net/ – National Minority Families Down Syndrome Network

http://smith-smiths.blogspot.com/


http://zyonair.com/blog1/


African American Parents of Children with Down Syndrome (Facebook Group)

Resources for Latino and Spanish Speaking Families


http://www.downsyndromeinfo.org/resources

http://www.nads.org/pages_new/new_parents/support_spanish.html

http://www.down21.org/

Resources for Asian American Families

http://health.groups.yahoo.com/group/asianparentsgroup/

http://www.hawaiidownsyndrome.com/

http://www.bradnet.org.uk/

http://www.p2ppower.org/

Special Needs Trusts as an Advocacy Tool
http://help.senate.gov/Hearings/2005_10_20/Lawhead.pdf

http://www.achievingindependence.com/

http://caremanager.org/ - Association of Professional Geriatric Care Managers

http://www.guardianship.org/ - National Guardianship Association

Growing Up, Growing Older, Mental and Physical Wellness in Adults with DS

www.advocatehealth.com/adultdown

Planning for Adult Communication Needs and Skills During the School Years

http://www.thegraycenter.org/


http://www.dimagine.com/index.html


http://www.modelmekids.com/


http://www.sandbox-learning.com/






Volunteering and Service: Meaningful Opportunities to Foster Community, Independence and Develop Skills


http://www.nationalservice.gov/


http://www.serviceandinclusion.org/






DS Cognition Research: “Unprecedented” Progress and Promising New Therapeutic Strategies and Opportunities


http://www.dsrtf.org/


http://www.dsrtf.org/news-ds.htm


http://www.dsrtf.org/news-dsrtf.htm






How Current Congressional Activity and Federal Legislation Affect You


http://www.passthecommunitychoiceact.org/


http://www.passtheclassact.org/





A Brave New World? Prenatal Testing and DS


http://www.brightertomorrows.org/


http://www.downsyndromebrochure.com/


http://www.mhdsa.org/videos/VirtualVisitsFamilyNewParents.htm


http://www.dsagc.com/


http://www.dsact.com/index-2.html


http://www.dsagc.com/programs_adoption.asp


http://www.reecesrainbow.org/


http://www.dsaoc.org/programs/tunnelEnglish.pdf


http://www.kcdsg.org/files/content/NewBeginningsMagazine.pdf


http://canisterco.com/books/index.html


http://www.dsact.com/images/docs/07LtrtoExpectantParents.pdf


http://www.bandofangels.com/


http://giftsds.segullah.org/


http://www.lopsidepress.com/pamphlet


http://anniegroves.wordpress.com/2008/01/12/the-phone-call-the-day-and-the-doctors-office/


http://catholicnewsagency.com/new.php?n-13408


http://www.timesonline.co.uk/tol/comment/faith/article2343739.ece


http://www.smh.com.au/news/health/increase-in-down-syndrome/2008/05/15/1210764961237.html


http://www.cnsnews.com/Public/content/article.aspx?RsrdD=33833


http://www.thinkcollege.net/


http://www.dsagc.com/programs_adoption.asp


http://www.webmd.com/cancer/news/20080102/down-syndrome-may-curb-cancer


http://www.sciencedaily.com/releases/2008/02/080204143158.htm






Open Your Gifts: Sharing the Riches of Parenting A Child with DS


http://www.ltbds.org/ – Lives Touched by Down syndrome


http://acog.org/from_home/publications/press_releases/nr01-02-07-1.cfm


http://www.newscientist.com/article/dn11095-noninvasive-downs-syndrome-test-shows-promise.html


http://www.nytimes.com/2007/05/09/us/09down.html?_r=2&pagewanted-1&oref=slogin


http://www.news.harvard.edu.gazette/2005/02.02/27-down.html


http://giftsds.segullah.org/gifts-outreach-program/






Employment for All: What you Need to Know about Supported and Customized Employment


http://help.senate.gov/Hearings/2005_10_20lawhead.pdf


http://www.emplink.org/


http://www.cdhs.state.co.us/ddd/PDFs/AdHocCommitteeonEmpAndCommunityFinalReportEmployment.pdf






Universal Design for Learning: Meaningful Access to the Curriculum for All Students


http://www.cast.org/


http://www.udl4allstudents.com/


http://udleditions.cast.org/


http://osepideasthatwork.org/udl/index.asp


http://www.tash.org/dev/tashcms/ewebeditpro5/upload/UDL_NCLD_Parent_s_Guide.pdf


http://cast.org/publications/UDLguidelines/version1.html






Why Not College? Start Planning Now


http://ndss.org/index.php?option=com_content&view=article&id=126%3Atransition-apostsecondary-initiative&catid=48%3Alegislative-and-policy-agenda&itemid=143&limitstart=1


http://www.thinkcollege.net/


http://uclaextension.edu/pathway


http://uclaextension-pathway.blogspot.com/






Comprehensive Special Needs Planning: Life Resources, Financial and Legal


http://www.coloradofinancialpartners.com/






Issues and Concerns during Pubescence


http://www.marshmedia.com/ – Guides to Growing up


http://www.stanfield.com/ – Changes in You, etc.


http://www.kingcounty.gov/healthservices/health/person/famplan/educators/FLASH.aspx (be sure to scroll down to lesson plans for special education)


http://www.woodbinehouse.com/


http://www.futurehorizons-autism.com/


http://www.dsansw.org.au/index.php?pg261


http://www.specialneeds.com/ – Changes in You


http://www.cdss.ca/en/store/sexuality_and_relationships.htm


http://www.americangirlsstore.com/ – The Care and Keeping of You






Creating a Collaborative Environment>


http://www.blueribbonschools.com/






5 Secrets of Effective Parents


http://www.becomeabetterfather.com/






Supporting Higher Math: Songs, Stories, Games and More


http://shop.downsed.com/epages/DownsEd.sf/en_GB/?ObjectPath=/Shops/DownsEd/Products/12101-001801


http://www.epsbooks.com/ – Attack Math

http://avcsbooks.com/ – Attack Math, Developing Number Concepts


http://www.mathusee.com/worksheet/worksheet.html


http://www.rocknlearn.com/html/telling_time.htm






Personal Safety Skills, Self-Determination and Abuse Awareness>

http://www.safelifeproject.org/






Visual Tools & Strategies


http://asksaal.org/


http://dimagine.com/


http://disabilityisnatural.com/


http://disabilitysolutions.org/


http://HSRI.ORG/LEADERS


http://inclusion.com/


http://inclusiveschools.org/


http://kidstogether.org/


http://normemma.com/


http://peakparent.org/


http://www.usevisualstrategies.com/






Strategies for Teaching and Supporting Healthy Sexuality

>
http://www.parentingpress.com/ – Loving Touches


http://www.teach-a-bodies.com/


http://www.annickpress.com/ – The Bare Naked Book


http://www.newmooncatalog.com/ – The Period Book


www.roeher.ca/english/about/about/htm - Out of Harm’s Way


http://www.prometheusbooks.com/index.php?main_page=index&cPath=96_127 Did the Sun Shine Before You were Born?


http://www.rcpsych.ac.uk/publications/bbw - Books Beyond Words


http://www.dsansw.org.au/index.php?pg=261- Talk to Me


http://www.jkp.com/catalogue/index.php/cat/autism


http://www.pbrookes.com/


www.roeher.ca/english/about/about/htm


http://www.dsansw.org.au/index.php?pg261

http://www
.diverse-city.com/
– Just Say Know


http://www.brokespublishing.com/store/books/walkerhirsch-67144/index.htm


http://www.jkp.com/catalogue/index.php/cat/autism


http://disabilitytraining.com/sexed.html


http://poetv.com/video.php?vid=10537


http://www.pfg.unc.edu/~ncodh/pdfs/providersguide.pdf


http://egeneralmedical.com/familyhealth.html


http://www.fpg.unc.edu/~ncodh/pdfs/wbhealthy.pfd


http://www.yai.org/ – Relationship Series

9 comments:

Kristen said...

WOW!!! That had to take a long time! Thank you so much for doing that for everyone! I will be taking some time to go through them!

Ria said...

Awesome! Thanks for this great list. I will add a link on my blog to this post.

Csunshinegirl said...

You so ROCK! Thanks so much!

Jennie said...

M - Thanks so much for posting all of this great information! We didn't make it to Sacramento either, but we're hoping to get to Orlando next year.

Tara said...

You rock! Really! I'm sending a link to this to every Ds mom I know! Thank you SO MUCH!!!

Library said...

This is great. I haven't worked through all of them, but I've noticed a couple that aren't right in the Strategies for Teaching Healthy Sexuality. The Talk to Me manual is no longer at that address. it is available at: http://www.dsansw.org.au/index.php?pg=261
Also the 2nd to last link is a typo pfd instead of pdf on the end.

Carrie said...

Thanks!!!

Yo Mamma Mamma! said...

Library, thanks for the feedback - I fixed those two links!

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