NDSC Convention Compendium Web Links
Since Violette was born, I've followed what has gone on at the NDSC Convention. It is the Annual Gathering of the DS Community. The first year she was born, the event was in Kansas City. I bought the CD's and listened to every single presentation in my car. With over 60 Workshops, it makes for a lot of information on Down syndrome! My girls kept asking me when I'd EVER be finished with the BORING CD's!
I went to the Boston Conference last year. It was great, and I learned a lot and more importantly got to know a bunch of great people in the DS community.
This year it was in Sacramento. I didn't go, but I did get the Compendium of all of the papers. I have the CD's on order.
I always wished that there were a spot online where I could go and click on all of the links for all of the presentations. This year, I decided that I really wanted them all in once place, so I went ahead and typed them all up. They are listed below. Some of the links I'm certain don't work - please leave me a note saying which ones are wrong and I'll check to see if they are bad links and try to correct them, or if it was my own error (which is more likely!)
Math Doesn’t Have to be a Drag
www.dsfoc.org -The Learning Program
http://www.see-and-learn.org/ - DownsED International’s See and Learn Program
http://www.downsed.org/discussion-lists/ - Join one of the DownsEd International’s Discussion Lists
Join One of the Learning Program Email Lists
thelearningprogram@yahoogroups.com – for anyone using LP materials
TLP_teacher2teacher@yahoogroups.com – for educators
http://www.downsed-usa.org/
http://www.learningpage.com/ - Math Worksheets
Behavior and Communication: Promoting Positive Behavior Change
http://www.apbs.org/ – The Association for Positive Behavior Support
http://www.pbis.org/ – Center on Positive Behavioral Interventions and support
http://rrtcpbs.fmhi.usf.edu/ - Rehabilitation Research & Training Center on Positive Behavior Support
http://flpbs.fmhi.usf.edu/ - Florida’s Positive Behavior Support Project
http://education.ucsb.edu/autism/JPBI.htm - The Journal of Positive Behavior Interventions
http://www.beachcenter.org/ – The Beach Center on Disability
http://www.behavioradvisor.com/ – Dr. Mac’s Amazing Behavior Management Advice Site
http://challengingbehavior.fmhi.usf.edu/ - Center for Evidence-Based Practice: Young Children With Challenging Behavior
http://www.iidc.indiana.edu/irca/ - Access Autism
Improving Feeding Skills and Speech Clarity: Using Oral Motor Therapy
http://www.talktools.net/
A Land of Opportunity: Increasing Diversity within Your Organization
http://www.ndsccenter.org/
http://www.tash.org/
http://www.ndss.org/
http://www.downsyndromeindiana.org/
Resources for African American Families
http://www.prince-evan.net/ – National Minority Families Down Syndrome Network
http://smith-smiths.blogspot.com/
http://zyonair.com/blog1/
African American Parents of Children with Down Syndrome (Facebook Group)
Resources for Latino and Spanish Speaking Families
http://www.downsyndromeinfo.org/resources
http://www.nads.org/pages_new/new_parents/support_spanish.html
http://www.down21.org/
Resources for Asian American Families
http://health.groups.yahoo.com/group/asianparentsgroup/
http://www.hawaiidownsyndrome.com/
http://www.bradnet.org.uk/
http://www.p2ppower.org/
Special Needs Trusts as an Advocacy Tool
http://help.senate.gov/Hearings/2005_10_20/Lawhead.pdf
http://www.achievingindependence.com/
http://caremanager.org/ - Association of Professional Geriatric Care Managers
http://www.guardianship.org/ - National Guardianship Association
Growing Up, Growing Older, Mental and Physical Wellness in Adults with DS
www.advocatehealth.com/adultdown
Planning for Adult Communication Needs and Skills During the School Years
http://www.thegraycenter.org/
http://www.dimagine.com/index.html
http://www.modelmekids.com/
http://www.sandbox-learning.com/
Volunteering and Service: Meaningful Opportunities to Foster Community, Independence and Develop Skills
http://www.nationalservice.gov/
http://www.serviceandinclusion.org/
DS Cognition Research: “Unprecedented” Progress and Promising New Therapeutic Strategies and Opportunities
http://www.dsrtf.org/
http://www.dsrtf.org/news-ds.htm
http://www.dsrtf.org/news-dsrtf.htm
How Current Congressional Activity and Federal Legislation Affect You
http://www.passthecommunitychoiceact.org/
http://www.passtheclassact.org/
A Brave New World? Prenatal Testing and DS
http://www.brightertomorrows.org/
http://www.downsyndromebrochure.com/
http://www.mhdsa.org/videos/VirtualVisitsFamilyNewParents.htm
http://www.dsagc.com/
http://www.dsact.com/index-2.html
http://www.dsagc.com/programs_adoption.asp
http://www.reecesrainbow.org/
http://www.dsaoc.org/programs/tunnelEnglish.pdf
http://www.kcdsg.org/files/content/NewBeginningsMagazine.pdf
http://canisterco.com/books/index.html
http://www.dsact.com/images/docs/07LtrtoExpectantParents.pdf
http://www.bandofangels.com/
http://giftsds.segullah.org/
http://www.lopsidepress.com/pamphlet
http://anniegroves.wordpress.com/2008/01/12/the-phone-call-the-day-and-the-doctors-office/
http://catholicnewsagency.com/new.php?n-13408
http://www.timesonline.co.uk/tol/comment/faith/article2343739.ece
http://www.smh.com.au/news/health/increase-in-down-syndrome/2008/05/15/1210764961237.html
http://www.cnsnews.com/Public/content/article.aspx?RsrdD=33833
http://www.thinkcollege.net/
http://www.dsagc.com/programs_adoption.asp
http://www.webmd.com/cancer/news/20080102/down-syndrome-may-curb-cancer
http://www.sciencedaily.com/releases/2008/02/080204143158.htm
Open Your Gifts: Sharing the Riches of Parenting A Child with DS
http://www.ltbds.org/ – Lives Touched by Down syndrome
http://acog.org/from_home/publications/press_releases/nr01-02-07-1.cfm
http://www.newscientist.com/article/dn11095-noninvasive-downs-syndrome-test-shows-promise.html
http://www.nytimes.com/2007/05/09/us/09down.html?_r=2&pagewanted-1&oref=slogin
http://www.news.harvard.edu.gazette/2005/02.02/27-down.html
http://giftsds.segullah.org/gifts-outreach-program/
Employment for All: What you Need to Know about Supported and Customized Employment
http://help.senate.gov/Hearings/2005_10_20lawhead.pdf
http://www.emplink.org/
http://www.cdhs.state.co.us/ddd/PDFs/AdHocCommitteeonEmpAndCommunityFinalReportEmployment.pdf
Universal Design for Learning: Meaningful Access to the Curriculum for All Students
http://www.cast.org/
http://www.udl4allstudents.com/
http://udleditions.cast.org/
http://osepideasthatwork.org/udl/index.asp
http://www.tash.org/dev/tashcms/ewebeditpro5/upload/UDL_NCLD_Parent_s_Guide.pdf
http://cast.org/publications/UDLguidelines/version1.html
Why Not College? Start Planning Now
http://ndss.org/index.php?option=com_content&view=article&id=126%3Atransition-apostsecondary-initiative&catid=48%3Alegislative-and-policy-agenda&itemid=143&limitstart=1
http://www.thinkcollege.net/
http://uclaextension.edu/pathway
http://uclaextension-pathway.blogspot.com/
Comprehensive Special Needs Planning: Life Resources, Financial and Legal
http://www.coloradofinancialpartners.com/
Issues and Concerns during Pubescence
http://www.marshmedia.com/ – Guides to Growing up
http://www.stanfield.com/ – Changes in You, etc.
http://www.kingcounty.gov/healthservices/health/person/famplan/educators/FLASH.aspx (be sure to scroll down to lesson plans for special education)
http://www.woodbinehouse.com/
http://www.futurehorizons-autism.com/
http://www.dsansw.org.au/index.php?pg261
http://www.specialneeds.com/ – Changes in You
http://www.cdss.ca/en/store/sexuality_and_relationships.htm
http://www.americangirlsstore.com/ – The Care and Keeping of You
Creating a Collaborative Environment>
http://www.blueribbonschools.com/
5 Secrets of Effective Parents
http://www.becomeabetterfather.com/
Supporting Higher Math: Songs, Stories, Games and More
http://shop.downsed.com/epages/DownsEd.sf/en_GB/?ObjectPath=/Shops/DownsEd/Products/12101-001801
http://www.epsbooks.com/ – Attack Math
http://avcsbooks.com/ – Attack Math, Developing Number Concepts
http://www.mathusee.com/worksheet/worksheet.html
http://www.rocknlearn.com/html/telling_time.htm
Personal Safety Skills, Self-Determination and Abuse Awareness>
http://www.safelifeproject.org/
Visual Tools & Strategies
http://asksaal.org/
http://dimagine.com/
http://disabilityisnatural.com/
http://disabilitysolutions.org/
http://HSRI.ORG/LEADERS
http://inclusion.com/
http://inclusiveschools.org/
http://kidstogether.org/
http://normemma.com/
http://peakparent.org/
http://www.usevisualstrategies.com/
Strategies for Teaching and Supporting Healthy Sexuality
>
http://www.parentingpress.com/ – Loving Touches
http://www.teach-a-bodies.com/
http://www.annickpress.com/ – The Bare Naked Book
http://www.newmooncatalog.com/ – The Period Book
www.roeher.ca/english/about/about/htm - Out of Harm’s Way
http://www.prometheusbooks.com/index.php?main_page=index&cPath=96_127 Did the Sun Shine Before You were Born?
http://www.rcpsych.ac.uk/publications/bbw - Books Beyond Words
http://www.dsansw.org.au/index.php?pg=261- Talk to Me
http://www.jkp.com/catalogue/index.php/cat/autism
http://www.pbrookes.com/
www.roeher.ca/english/about/about/htm
http://www.dsansw.org.au/index.php?pg261
http://www
.diverse-city.com/ – Just Say Know
http://www.brokespublishing.com/store/books/walkerhirsch-67144/index.htm
http://www.jkp.com/catalogue/index.php/cat/autism
http://disabilitytraining.com/sexed.html
http://poetv.com/video.php?vid=10537
http://www.pfg.unc.edu/~ncodh/pdfs/providersguide.pdf
http://egeneralmedical.com/familyhealth.html
http://www.fpg.unc.edu/~ncodh/pdfs/wbhealthy.pfd
http://www.yai.org/ – Relationship Series
9 comments:
WOW!!! That had to take a long time! Thank you so much for doing that for everyone! I will be taking some time to go through them!
Awesome! Thanks for this great list. I will add a link on my blog to this post.
You so ROCK! Thanks so much!
M - Thanks so much for posting all of this great information! We didn't make it to Sacramento either, but we're hoping to get to Orlando next year.
You rock! Really! I'm sending a link to this to every Ds mom I know! Thank you SO MUCH!!!
This is great. I haven't worked through all of them, but I've noticed a couple that aren't right in the Strategies for Teaching Healthy Sexuality. The Talk to Me manual is no longer at that address. it is available at: http://www.dsansw.org.au/index.php?pg=261
Also the 2nd to last link is a typo pfd instead of pdf on the end.
Thanks!!!
Library, thanks for the feedback - I fixed those two links!
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