If you want to know a question that always puzzles a mama with a child with Down syndrome, one that would certainly be in the top 10 is "How severe is it?" It is kind of like asking a bald man how severe his baldness is? Is it less severe when he's starting to lose the hair? Is it only severe when he's bald? How do you measure that sort of thing? If you have high expectations, and she does well, does that mean it isn't severe? What if you had low expectations, and she's better than that - severe or not severe? Am I judging based on how happy she is? How well she does at playing games? Academically? IQ? How well she does physically climbing and such? Her health issues? How she is compared to the other girls? It seems an impossible question to answer.
Every part of her 100% has Down syndrome - not a little, not a touch of it (that's for you, mom, lol), not "I don't see it in her it must be mild." She is a person who has Down syndrome. On the one hand it is as 'severe' as it gets...LOL. On the other hand, there is nothing severe about Violette...she's just silly as you can see in this video from earlier today! We, like most parents of kids with DS, feel like she's doing great!